“Before I formed you in the womb I knew you; before you were born I sanctified you;…” Jeremiah 1:5 —

Life sometimes deals us a hand that takes us off guard. We think things are going to go one way, when they actually go another. Such is life. We make plans for this and that, and then such and such happens. John Lennon said it best, “Life is what happens to you while you’re busy making other plans.”

It usually takes us by surprise and we either spend time trying to get out of it by throwing in the cards, or we grasp hold of the cards dealt to us seeing it as a challenge and play our hand.

The following video I found while doing a search on a rare disorder that has touched a very precious little one dear to our family. As I present the video to you, hoping to bring awareness to this syndrome/disorder, I also want to encourage all who have been affected by circumstances beyond your control: Nothing has and never will be able to touch your life until it first has been filtered through the loving hands of a good and merciful God.

The first thing we usually ask ourselves when presented with challenges is “Why?” Well, we can’t possible know the reasons as to why certain things happen. My own personal experience is one of first somehow blaming myself. Not able to have children, that is what I did for years. God is punishing me for something, therefore He does not want me to be a mother. 

Some would say God didn’t create imperfection, that Satan does. Therefore, these people would have us to believe that any and all who are born with a syndrome or a disorder was somehow made by the hand of Satan? Uh, I — don’t — think — so.

Who are we to decide what is perfect or not? If God is the Creator — and He is — then isn’t He perfect in everything? Each of us are made in God’s image. He decides what we look like: dimples, the color of our eyes and hair, the size of our nose, our stature, etc. He decides how and what we will be blessed in. Some are blessed with a sense of humor, some prone to music, art, mechanical ability, creative ability, some with great scientific minds, some are blessed with a reserved nature, others with a stronger more passionate one, etc. Hopefully you get the picture.

I do not believe God has some kind of assembly line of babies and just tosses them down to earth to be born. I believe that when a man and woman come together in love desiring to make their family, He sees every little detail, every single trait in everyone, and His perfection puts the perfect baby together with the perfect parents — for that parent and for that baby.

That little life will grow one day. God has already ordained what lives he or she will touch, what lives he or she will bless. Just by being themself. God has already decided who that little babies playmates will be, who will understand him and love him. Some are already in his life.

We have a tendency to look upon our own ability, our own strength … but God wants us to look upon His. As in Moses’s case.

God wanted Moses to speak to Israel. Moses had this to say:

Then Moses said to the Lord, “O my Lord, I am not eloquent, neither before nor since You have spoken to Your servant; but I am slow of speech and slow of tongue.”

So the Lord said to him, “Who has made man’s mouth? Or who makes the mute, the deaf, the seeing, or the blind? Have not I, the Lord? Now therefore, go, and I will be with your mouth and teach you what you shall say.” — Exodus 4:10-12 —

You see, Moses was looking at his personal weakness. Ok, so he couldn’t talk all that well. So what? No big deal to God. God wanted Moses to know that it was HE who created him. I don’t know what Moses thought at that moment, but if it had been me, I probably would have said something like, “Well, gee, God thanks a lot.” But God had other plans for Moses.

I believe our weaknesses or/and challenges are meant for one thing and one thing only: I believe they are for us to see the glory of God come alive in our circumstances. The same goes for little babies born a little differently than the next baby. So, if you are dealing with something that is going to be a challenge down the road, know this: God does not make mistakes. He sees, He knows every little detail. He put you and that baby together for a wonderful reason. Parent and child are meant to compliment one another, and you will. You see, it does not take God by surprise. He loves you and your baby. He has so many things for you to learn that otherwise you would have never known. There is a special kind of joy awaiting for you both and it is God who is going to lead you into that joy. You just wait and see.

kyliebewley: This is a video that i made (with a little help from my sister in law) about my brave little boy…
I would like to raise awareness of TRISOMY 8 MOSAIC syndrome as I believe that there is not enough knowledge and too many children go under the radar….